FCA logo

Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Aging and Disability Resource Center (ADRC)

https://iowaaging.gov/

The Aging and Disability Resource Center (ADRC) helps older Iowans, adults with disabilities, veterans, and caregivers learn more about long-term living services and supports available throughout the state.

Care Recipient Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Caregiver Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Contact Information

866-468-7887

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

http://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

Iowa Department on Aging

http://www.aging.iowa.gov/

List of Area Agencies on Aging and other resources for people 60 years or older.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Local: (515) 725-3333 Toll-free: (800) 532-3213 TTY Accessible Telephone Number: (515) 725-3333

AAAs offer aging services, including:
– Information and Assistance
– Care Management
– Nutrition Services (i.e., Meals on Wheels)
– Legal Assistance
– Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within Iowa, call: (866) 468-7887

Can I Get Help to Pay for Caregiving?

Home and Community Based Services: Elderly Waiver

https://dhs.iowa.gov/ime/members/medicaid-a-to-z/hcbs/waivers

Iowa’s Elderly Waiver is a Medicaid waiver that allows family members, excluding spouses and legal guardians, to be hired and paid for personal care services. Other services may include:

  • Case management
  • Adult day care
  • Home delivered meals
  • Homemaker/Chore services
  • Respite 
  • Transportation
  • Nursing care
  • Emergency response system

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Iowa Medicaid Member Services: 1-800-338-8366

Relay Iowa (TTY): 1-800-735-2942

Home and Community Based Services: Health and Disability Waiver

https://dhs.iowa.gov/ime/members/medicaid-a-to-z/hcbs/waivers

Iowa’s Health and Disability Waiver is a Medicaid waiver that allows the care recipient to pick and choose their personal care attendant- certain family members may be eligible- who is able to assist with skilled and/or non-skilled services such as tube feedings, monitoring medications, injections, dressing, hygiene, transferring, eating, feeding, etc.. Other services may include:

  • Home and vehicle modifications
  • Home delivered meals
  • Home health aide
  • Nursing care
  • Respite
  • Nutritional counseling
  • Personal emergency response system

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Iowa Medicaid Member Services: 1-800-338-8366

Relay Iowa (TTY): 1-800-735-2942

Iowa’s Senior Living Program is a non-Medicaid program that offers a Case Management Program for Frail Adults, which helps family caregivers be paid for personal care services. Other service may include: 

  • Adult day care
  • Chore services
  • Meal delivery 
  • Nursing care
  • Respite
  • Transportation

Care Recipient Eligibility

Anyone 

Caregiver Eligibility

Anyone 

Contact Information

Iowa Department on Aging: 800-532-3213

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – Iowa

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Family Resource Center

http://www.carrollfrc.org/

A consumer-driven program to assist the disabled through Medicaid Waiver services to live as independently as possible in their home communities.

Care Recipient Eligibility

Anyone caring for someone who meets recipient eligibility.

Caregiver Eligibility

Anyone caring for someone who meets recipient eligibility.

Contact Information

(800) 999-5101 (712) 792-6440

Iowa Compass has information about programs and services for Iowans with disabilities their families and service providers. Access thousands of unique local, state and national programs for people with complex health related conditions and disabilities. Call, email or search the website https://iowacompass.org for answers to your disability-related questions.

Our mission statement is: Iowa Compass connects people with disabilities and complex health-related needs to services and supports in their communities throughout Iowa.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 779-2001 711 for Relay

A hotline available to residents of Iowa offers information and referral services on a variety of topics including:
– Legal advice
– Family finance
– Personal health and stress management
– Crisis and disaster help

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 447-1985

Iowa County-Specific Veterans Service Officer Contacts (VSO)

https://va.iowa.gov/counties

Contact Information

(800) 838.4692

Iowa Department of Veterans Affairs

https://va.iowa.gov/

Provides Iowa’s aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(800) 838-4692 Emergency: (800) 273-8255

Iowa Elderly Waiver Program

http://www.ime.state.ia.us/docs/EW2Packet.pdf

A government program that assists eligible individuals to remain at home by helping to pay for home and community based services, including:
– Home delivered meals
– Home health and personal care
– Adult day care
– Transportation
– Assistive Devices
– Respite

Care Recipient Eligibility

Anyone caring for someone who meets care receiver criteria

Caregiver Eligibility

Anyone caring for someone who meets care receiver criteria

Contact Information

Local: (515) 725-3333 Toll-free: (800) 532-3213 TTY Accessible Telephone Number: (515) 725-3333

AAAs offer aging services, including:
– Information and Assistance
– Care Management
– Nutrition Services (i.e., Meals on Wheels)
– Legal Assistance
– Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within Iowa, call: (866) 468-7887

Iowa Health Insurance Premium Payment (HIPP)

http://www.dhs.state.ia.us/hipp/

The HIPP Program helps people get insurance or keep insurance they already have by paying for the premiums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(888) 346-9562

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Apply though the online DHS Service Portal

Iowa Senior Health Insurance Information Program (SHIP)

http://www.shiip.state.ia.us/

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800)-351-4664 TTY: (800) 735-2942

Information about eligibility and requirements for home and community-based services by state.

Can I Get Help While Living In My Home?

Aging and Disability Resource Center (ADRC)

https://iowaaging.gov/

The Aging and Disability Resource Center (ADRC) helps older Iowans, adults with disabilities, veterans, and caregivers learn more about long-term living services and supports available throughout the state.

Care Recipient Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Caregiver Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Contact Information

866-468-7887

Case Management Program for the Frail Elderly (CMPFE)

http://www.state.ia.us/government/dea/living/cmpfe.html

Provides comprehensive care management for frail older adults and adults with disabilities, including:
– In-depth assessment of the care receiver living at home
– Creation of a care plan
– Help accessing needed services

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Local: (515) 725-3333 Toll-free: (800) 532-3213 TTY Accessible Telephone Number: (515) 725-3333

Iowa City Hospice

http://iowacityhospice.org/

Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(319) 351-5665 (800) 897-3052

Iowa Compass has information about programs and services for Iowans with disabilities their families and service providers. Access thousands of unique local, state and national programs for people with complex health related conditions and disabilities. Call, email or search the website https://iowacompass.org for answers to your disability-related questions.

Our mission statement is: Iowa Compass connects people with disabilities and complex health-related needs to services and supports in their communities throughout Iowa.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 779-2001 711 for Relay

Iowa County-Specific Veterans Service Officer Contacts (VSO)

https://va.iowa.gov/counties

Contact Information

(800) 838.4692

Iowa Department of Inspections

http://www.state.ia.us/government/dia/index.html

Government agency responsible for inspecting and licensing long-term care providers and facilities. Provides a hotline for complaints about long term care services and online directories of:
– Adult Day Programs
– Nursing homes
– Assisted Living Facilities
– In home care agencies

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

General: (515) 281-7102 Nursing Home Complaint Hotline: (877) 686-0027 Home Health Hotline: (800) 383-4920 Welfare Fraud Hotline: (800) 831-1394

Iowa Elderly Waiver Program

http://www.ime.state.ia.us/docs/EW2Packet.pdf

A government program that assists eligible individuals to remain at home by helping to pay for home and community based services, including:
– Home delivered meals
– Home health and personal care
– Adult day care
– Transportation
– Assistive Devices
– Respite

Care Recipient Eligibility

Anyone caring for someone who meets care receiver criteria

Caregiver Eligibility

Anyone caring for someone who meets care receiver criteria

Contact Information

Local: (515) 725-3333 Toll-free: (800) 532-3213 TTY Accessible Telephone Number: (515) 725-3333

Iowa Statewide Independent Living Council (SILC)

http://www.ivrs.iowa.gov/clients/independentlivingprogram.html

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and Referral
– Peer counseling
– Care Management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(877) 466-7442 or (515) 282-0275

The Hospice and Palliative Care Association of Iowa

http://www.hpcai.org/

Provides information about end-of-life care. It’s website includes a membership directory which allows the user to search for local hospice service providers.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Visit the Association's directory website for local resources

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Iowa City Hospice

http://iowacityhospice.org/

Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(319) 351-5665 (800) 897-3052

Iowa Department of Inspections

http://www.state.ia.us/government/dia/index.html

Government agency responsible for inspecting and licensing long-term care providers and facilities. Provides a hotline for complaints about long term care services and online directories of:
– Adult Day Programs
– Nursing homes
– Assisted Living Facilities
– In home care agencies

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

General: (515) 281-7102 Nursing Home Complaint Hotline: (877) 686-0027 Home Health Hotline: (800) 383-4920 Welfare Fraud Hotline: (800) 831-1394

The Hospice and Palliative Care Association of Iowa

http://www.hpcai.org/

Provides information about end-of-life care. It’s website includes a membership directory which allows the user to search for local hospice service providers.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Visit the Association's directory website for local resources

University of Iowa Hospitals and Clinics Social Services

http://www.uihealthcare.org/socialservice/

Provides online directories of community resources including:
– Assisted living facilities
– Dementia care units
– Retirement communities
– Subsidized housing in Iowa
– Brain injury resources

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(319) 356-2207

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Iowa

https://www.caregiver.org/uploads/2023/08/Iowa-2023-1-1.pdf