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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

http://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

Pennsylvania Area Agencies on Aging (AAAs)

https://p4a.org/

Pennsylvania’s 52 Area Agencies on Aging (AAAs) have served the Commonwealth’s 67 counties by providing information about resources and service providers, assessing needs for service, making referrals to case managers, and linking to services. These local agencies have been providing vital services, programs and information to millions of older Pennsylvanians and their caregivers, including legal services, home-delivered meals, health promotion and disease prevention, transportation, public benefits counseling, senior centers and in-home services.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To identify your local Area Agency on Aging (AAA) click here

Can I Get Help to Pay for Caregiving?

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

The Options program is a non-Medicaid program that allows certain family members to be hired and paid as the personal care provider. Other services may include:

  • In-home care
  • Medical supplies
  • Assistive devices
  • Respite
  • Counseling

Area Agency on Aging Locator: https://www.aging.pa.gov/local-resources/Pages/AAA.aspx

Care Recipient Eligibility

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Caregiver Eligibility

_____

Contact Information

Pennsylvania Department of Aging: 717-783-1550

*see website for local Area Agency on Aging county office contact information

SMW is a Medicaid option that allows certain family members, excluding spouses and legal guardians, to be hired and paid as the personal care provider. 

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Pennsylvania Long Term Care Helpline: 1-866-286-3636

Government Benefits and General Information

Aging and Disability Resource Centers (ADRCs) – Pennsylvania

http://www.aging.pa.gov/local-resources/pa-link/Pages/default.aspx#.VzpK-CMrInU

ADRCs provide information and access to community services and serve as the entry point to long-term care services.

Care Recipient Eligibility

Anyone caring for someone who meets care receiver eligibility

Caregiver Eligibility

Anyone caring for someone who meets care receiver eligibility

Contact Information

(800) 753-8827

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 783-7067

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – Pennsylvania

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

LIFE (Living Independence for the Elderly

https://www.palifeprograms.org/

Living Independence for the Elderly (LIFE) is a managed care program that provides a comprehensive, all-inclusive package of medical and supportive services. LIFE is an option that allows older Pennsylvanians to live independently while receiving services and supports that meet the health and personal needs of the individual.

The program is known nationally as the Program of All-Inclusive Care for the Elderly (PACE). All PACE providers in Pennsylvania have “LIFE” in their name.

Locate a LIFE Program by zip code.

Care Recipient Eligibility

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Caregiver Eligibility

___

Contact Information

PA CHC Helpline - 1-844-824-3655

Information about eligibility and requirements for home and community-based services by state.

Pennsylvania’s prescription assistance programs for older adults, PACE and PACENET, offer low-cost prescription medication to qualified residents, age 65 and older. The program works with Medicare Part D plans and other prescription drug plans such as retiree/union coverage, employer plans, Medicare Advantage (HMO, PPO) and Veterans’ Benefits (VA) to lower out-of-pocket costs for medications.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Within Pennsylvania: (800) 225-7223 TTY: (800) 222-9004

Pennsylvania Bureau For Veterans Affairs

http://www.paveterans.state.pa.us

Provides Pennsylvania’s aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 547-2838

Pennsylvania County-Specific Veterans Service Officer Contacts (VSO)

http://www.dmva.state.pa.us/portal/server.pt/community/dmva_home/5902

Contact Information

(800) 547-2838

Pennsylvania Family Caregiver Support Program

http://www.aging.state.pa.us

The Pennsylvania Caregiver Support Program provides resources and assistance to individuals who assume the primary responsibility for the provision of care to encourage a healthy, ongoing relationship with their care receiver. The program provides access to respite care, addressing the need for formal and informal supports, and providing financial reimbursement for out-of-pocket costs associated with caregiving-related services and supplies.

This program is administered by the local Area Agency on Aging.

Care Recipient Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

See Pennsylvania Dept. of Aging website to find contact information for your local AAA or call: (717) 783-8975 (717) 705-8887

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 550-4355

The Pennsylvania Insurance Department

https://www.pa.gov/

Provides an objective source of information that helps consumers understand insurance coverage, benefits and options.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(877) 8816388

Can I Get Help While Living In My Home?

Aging Home and Community-Based Waiver Services

https://www.dhs.pa.gov/Services/Disabilities-Aging/Pages/Aging-Waiver.aspx

Aging Home and Community-Based Waiver Services may be available to Pennsylvanians over the age of 60 to enable them to continue to live in their homes and communities with support and services.

For more information, please contact your local Area Agency on Aging.
http://www.aging.pa.gov/local-resources/Pages/AAA.aspx

Care Recipient Eligibility

___

Caregiver Eligibility

___

Pennsylvania Adult Day Services Association (PADSA)

http://www.padsa.org

Association of adult day service providers in Pennsylvania. Offers list of its members (not comprehensive of all adult day programs in Pennsylvania).

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(215) 877-0202

Pennsylvania Centers for Independent Living

http://www.cilcp.org/

A network of non-profit organizations that offer persons with disabilities:
– Information and Referral
– Peer groups
– Independent living skills training
– Systems change advocacy
– Legal assistance
– Emergency preparedness
– Access reviews for businesses
– Community education

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Identify your local Independent Living Center here: http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/PA Main Office: Voice/TTY: 717.731.1900 Help line: Voice/TTY (800) 323.6060

Pennsylvania County-Specific Veterans Service Officer Contacts (VSO)

http://www.dmva.state.pa.us/portal/server.pt/community/dmva_home/5902

Contact Information

(800) 547-2838

Pennsylvania Department of Aging – Adult Day Centers

http://www.aging.pa.gov/local-resources/Pages/Adult-Day-Center.aspx#.Vzo5FiMrK1s

Provides directory of adult day service programs by county throughout Pennsylvania.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Pennsylvania Hospice Network

http://www.pahospice.org/

A membership organization of hospice providers. The website provides a directory of hospice providers and links to other organizations.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Members: (866) 554-6774 (55-HOSPICE) All others: (717) 533-4002

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Nursing Care Facility Locator Page (Pennsylvania Dept. of Health)

https://sais.health.pa.gov/commonpoc/nhlocatorie.asp

Website that lists nursing home facilities in Pennsylvania.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

See website

Pennsylvania Hospice Network

http://www.pahospice.org/

A membership organization of hospice providers. The website provides a directory of hospice providers and links to other organizations.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Members: (866) 554-6774 (55-HOSPICE) All others: (717) 533-4002

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Pennsylvania

https://www.caregiver.org/uploads/2023/08/Pennsylvania-2023-1-1.pdf