Family Caregiver Services by State
I am New to Caregiving Where Do I Start?
ARCH National Respite Network
Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Eldercare Locator
The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Family Caregiver Alliance (FCA)
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.
CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.
www.caregiver.org/connecting-caregivers/fca-carenav/
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Area Agencies on Aging
Area Agencies have the primary task of planning and coordinating services and programs for older people in their respective areas. AAAs offer aging services, including:
– Information and assistance
– Care management
– Nutrition services (i.e., Meals on Wheels)
– Legal assistance
– Services for family caregivers through the Family Caregiver Support Program
Check out the website to locate your local Area Agency on Aging and its contact information.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Department on Aging
The mission of the Illinois Department on Aging is to serve and advocate for older Illinoisans and their caregivers by administering quality and culturally appropriate programs that promote partnerships and encourage independence, dignity, and quality of life.
Contact Information
Related Resources
Can I Get Help to Pay for Caregiving?
Market Rate for Long Term Care Services
The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
Related Resources
Government Benefits and General Information
Benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
Care Recipient Eligibility
N/A
Caregiver Eligibility
N/A
Contact Information
Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.
For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.
Benefits.gov – Illinois
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
Care Recipient Eligibility
N/A
Caregiver Eligibility
N/A
Contact Information
Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.
For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.
Equip for Equality
Non-profit organization advocates on behalf of individuals with disabilities by providing services including:
– Information and referral
– Legal services (limited representation)
– Education/Self-advocacy training
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois County-Specific Veterans Service Officer (VSO)
Veteran Service Officers (VSOs) are fellow veterans who are experts on federal, state and local veteran resources assists veterans in navigating the complex web of services and benefits available.
Check out the VSO Directory to connect with a VSO.
Contact Information
(800) 437-9824
Illinois Department of Veterans Affairs
Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Family Caregiver Support Program
FCSP services for family caregivers are provided through local Caregiver Resource Centers (CRCs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Limited supplemental services, such as transportation and home modifications
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Senior Helpline Within Illinois: (800) 252-8966
TTY:(888) 206-1327
Also, see website for local numbers
Illinois Medicaid
Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Respite Coalition
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to advocating support for families by ensuring access to quality respite services for the residents of Illinois.
The IRC is able to assist caregivers by connecting them to resources in their area, provide training on respite topics, and have funding available for emergency respite.
Caregiver Eligibility
Anyone caring for someone who meets care receiver eligibility criteria
Contact Information
Illinois Senior Health Insurance Program (SHIP)
Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
Related Resources
Where Do I Go for Legal Help And/Or Dependent Person Mistreatment?
Adult Protective Services Program
The Adult Protective Services Program prevents abuse, neglect, and financial exploitation of people with disabilities between the ages of 18-59 living in the community. Adult Protective Services provider ggencies conduct investigations and work with adults aged 60 or older and adults aged 18-59 with disabilities in resolving the abuse, neglect, or financial exploitation situation.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Center for Disability and Elder Law (CDEL)
CDEL is a Chicago area pro bono law firm that provides direct legal services to low-income seniors and persons with disabilities. CDEL volunteer attorneys represent clients in civil legal areas, including adult guardianship, real estate, landlord/tenant, dissolution of marriage, simple wills, powers of attorney, consumer fraud, collection defense and financial elder abuse.
Contact Information
(312) 376-1885
Coordinated Advice & Referral Program for Legal Services
Provides free legal services to residents in Cook County and throughout Illinois. Areas of law include: housing, employment, education, consumer debt, divorce, guardianships, estates, injuries to person or property, public benefits, and health care.
Contact Information
(312) 738-9200
Equip for Equality
Non-profit organization advocates on behalf of individuals with disabilities by providing services including:
– Information and referral
– Legal services (limited representation)
– Education/Self-advocacy training
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Citizens for Better Care
Association for the rights of residents of nursing homes. Its website contains information on quality of care and tips on how to choose a facility.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Client Assistance Program (CAP)
Government program advocates for the legal rights of people with disabilities. Services include:
– Information and referral
– Legal advocacy (limited representation)
– Education
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Guardianship & Advocacy Commission
The Illinois Guardianship and Advocacy Commission protects the rights and promotes the welfare of persons with disabilities through legal representation, investigating complaints of rights violations and providing state guardianship for Illinois’ population with disabilities.
Contact Information
Land of Lincoln Legal Assistance Foundation
Provides free civil legal help for low income and senior citizens in Southern Illinois. Topics covered include problems regarding: housing, family, consumer, homeownership, public benefits and health, senior and disabled services, education.
Contact Information
(618) 398-0574
Legal Aid Foundation of Chicago
Provides a range of legal services in the five main areas of law: Children & families, consumer, housing, immigrant & workers’ rights, public benefits.
Contact Information
(312) 341-1070
Long-Term Care Ombudsman Program
Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Senior Legal Assistance
The senior legal assistance provider offices provide legal services to Illinoisans 60 years of age or older. Legal assistance providers advocate for and represent older clients in civil cases – particularly those involving elder abuse and neglect, financial exploitation, consumer fraud, landlord-tenant relationships, nursing home residents’ rights, and conflicts over benefit programs such as Medicare, Medicaid, Social security and pensions. They also help with simple estate planning, living wills, and powers of attorney, perform research and conduct educational programs regarding legal rights on a wide variety of legal issues.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Can I Get Help While Living In My Home?
Community Care Program (CCP)
Government program assists low income older adults who require help with activities of daily living by helping to pay for home and community based services including:
– Care management
– In-home care
– Adult day are
– Transportation
– Home delivered meals
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Adult Day Service Association (IADSA)
Association of adult day care providers offers an Online Directory that allows consumers to locate adult day care providers in their community. Database consists of member providers of IADSA.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Area Agencies on Aging
Area Agencies have the primary task of planning and coordinating services and programs for older people in their respective areas. AAAs offer aging services, including:
– Information and assistance
– Care management
– Nutrition services (i.e., Meals on Wheels)
– Legal assistance
– Services for family caregivers through the Family Caregiver Support Program
Check out the website to locate your local Area Agency on Aging and its contact information.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Elderly Waiver
Government program assists Medicaid eligible older adults who require nursing level of care remain in the community by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Emergency home response
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois HomeCare and Hospice Council (IHHC)
Association of in-home care providers offers online directory that allows consumers to locate in-home care providers in their community. Database consists of member providers of IHCC.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Hospice and Palliative Care Organization (ILHPCO)
Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Network of Centers for Independent Living (INCIL)
A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and referral
– Peer counseling
– Care management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Persons with Brain Injury (BI) Waiver
Government program assists Medicaid eligible individuals who have a diagnosis of traumatic brain injury (TBI) who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Respite
– Skilled nursing services
– Physical, occupational and speech therapies
– Personal emergency response system
– Home adaptations
– Specialized medical equipment and supplies
– Home delivered meals
– Day habilitation
– Prevocational services
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Persons with Disabilities (PD) Waiver
Government program assists Medicaid eligible individuals age 59 or younger who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Respite
– Skilled nursing services
– Physical, occupational and speech therapies
– Personal emergency response system
– Home adaptations
– Specialized medical equipment and supplies
– Home delivered meals
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)
Choices for Care Program
Illinois law requires that all person’s aged 60 and over who are seeking admission to a long-term care facility be informed of all care options prior to admission, regardless of the individual’s income, assets or funding source. Care Coordinators conduct the screenings primarily in hospitals immediately prior to patient discharge. The screening process gives seniors and their families the opportunity to learn and ask questions about home and community-based services and long-term care services.
Check out the Choices for Care brochure for more information.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Council on Long Term Care
Association of nursing homes and rehabilitation centers in Illinois. Its website offers a search tool which allows the user to search for nursing homes and rehabilitation centers by city, county or zip code.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Illinois Hospice and Palliative Care Organization (ILHPCO)
Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Nursing Homes in Illinois – Illinois Department of Public Health
Government website provides information on nursing homes in Illinois. Its website offers a search tool which allows the user to search for licensed nursing homes by city, county or zip code and facility name.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Supportive Living Facilities (SLFs) Waiver
Government program assists low income adults living in assisted living facilities delay placement into a nursing home by providing the following services:
– In-home care
– Emergency home response
– Social/recreational programming
– Transportation
– Supplemental services